Anak comelku Autistic Spectrum Disorder

shidahameera

Originally posted by ummimon at 19-9-2008 11:47 AM
Sebenarnya I am afraid if I don't have the strenght to face the truth tho I feel I do at the moment.
To accept the fact that there's something wrong with my son pun it took me quite a while. Af ...

itu normal untuk parents macam kita ni. saya pada mulanya dulu rasa sedih sangat sebab anak lelaki saya tak normal macam budak sebaya walaupun fizikalnya dia sempurna.
Tapi lepas tu i accept dan banyak study pasal autisme, apa-apa pasal ADHD ke semua baca

puakumbu

Originally posted by losyen at 18-9-2008 10:03 AM
terima kasih atas nasihat. Saya ingin bertanya, bolehkah kanak2 autistik ni pulih seperti sediakala? maksud saya menjadi anak yg normal semula.

losyen,

setau saya autistic cannot be cured (maaf seandainya ada yang tersinggung dgn fakta yang saya berikan ya)...apa yang biasa dibuat adalah untuk membantu mereka untuk hidup senormal yang mungkin...sebab itu la saya katakan aritu,spend time as much as u can dgn kanak2 istimewa ini,teach them as much as u can tentang living skill,social skill etc...dengan cara ini insyaallah if kita buat tanpa putus asa,mereka akan dapat berfungsi seperti kanak2 normal yang lain...biasanya untuk yang very mild,mereka kelihatan dan berfungsi seperti kanak2 normal cuma bagi yang mengetahui tentang kanak2 tersebut (very mild) pasti akan tau yang mereka autistik (mungkin melalui apa yang mereka cakapkan repetitively ke atau mungkin kadang2 mereka macam dalam dunia mereka sendiri etc...bergantung pada karekter kanak2 tersebut)

puakumbu

Originally posted by shidahameera at 18-9-2008 05:36 PM



ANAK SAYA MILD AUTISM CIK PUAKUMBU. TAPI DIA MMG BOLEH BERCAKAP CUMA PERGAULAN SOsiol SAJA KURANG

berapa tahun umur anak shidah? it's normal for asd child kurang pergaulan social...

saya cadangkan shidah try expose/ajar dia untuk membantu social skill anak shidah tu...if dia dah ke sekolah the school will be a good place to teach them social skills...seperti how to play with friends,sharing toys,create conversation etc...kadang2 ada asd kids ni memerlukan "shadow aide" ketika disekolah..fungsi "shadow" ni ialah untuk membantu kanak2 tersebut disekolah ketika dalam class (response to teacher/kerja sekolah etc) atau ketika bermain dg kawan2,sebab biasanya mereka tak tau camna nak main ramai2..itu la fungsi "shadow"

ada jugak a few places in kl yang buat playgroup khas untuk asd children untuk ajar mereka tentang social skills.

puakumbu

Originally posted by ummimon at 19-9-2008 08:41 AM
we're meeting child phsychiatrist next monday to assess for ADD / autisme. hopefully everything will go on well. this assessment thingy, kena pegi byk sessions ke? can anyone comment? or does it  ...

boleh saya tau ummimon jumpa child phsychiatrist kat mana ya?

puakumbu

Originally posted by shidahameera at 19-9-2008 04:15 PM




itu normal untuk parents macam kita ni. saya pada mulanya dulu rasa sedih sangat sebab anak lelaki saya tak normal macam budak sebaya walaupun fizikalnya dia sempurna.
Tapi lepas tu i ac ...

betul kata shidah tu ummi...it's normal for prents to feel sad bila dapat tau anak mereka ada autism...banyakkan bersabar dan kuatkan semangat...jangan give up!! sekurang2nya Allah beri kita peluang untuk tau apa penyakit anak kita dan kita boleh berusaha untuk memberi yang terbaik untuk mereka.

cuba bayangkan orang2 di kampung/pedalaman bila dapat anak autism,saya pasti mereka tak tau nama penyakit tu dan mungkin juga tak tau kat mana nak dapatkan pertolongan...lebih menyedihkan lagi mungkin kanak2 itu cuma dibiarkan membesar tanpa sebarang bantuan...tiap kali saya bayangkan kanak2 autism dikampung/pedalaman,pasti rasa sedih dengan nasib mereka...alangkah baiknya kalau kita dapat membantu mereka seperti kanak2 dibandar jugak

puakumbu

Just nak share story yang saya baru baca online ni....harap dapat memberi semangat pada semua

Autism: A story of hope
Therapy helps boy reclaim childhood

By ROBERT M. COOK

Six-year-old Ryan Nichols loves to talk about his favorite toys, which recently were scattered throughout his family's living room.

He says he's especially fond of his NASCAR toys and Leapster gamepad, which he plays with in his bedroom.

Ryan also has been to Walt Disney World twice and often wears a Mickey Mouse sweat shirt he got there.

His parents, Frank and Dione Nichols, hinge on every word Ryan speaks to them. It's something they waited years to hear.

Their son, who has autism, now is reclaiming his childhood thanks to ongoing speech and occupational therapy, his parents said.

"When you start, there's so much to work on," Dione said. "We've made great progress, but the problem is the expectations keep going up each year."

Ryan attends a full-day kindergarten program. He also receives one hour each of speech and occupational therapy once weekly after school at Easter Seals New Hampshire in Dover.

Ryan has made new friends in his class and is just learning how to ask appropriate questions so he can converse with his classmates, his mother said.

For example, Ryan is learning to ask, "Any questions?" after making a show and tell presentation, his father said.

There are so many things Ryan does now that he couldn't when he was 3 and 4 years old, Dione said.

"We wondered if he would ever ask for a present" at Christmastime, she said.

This Christmas, Ryan asked for a Lego airplane. He also opened his presents in less than an hour on Christmas morning, his father said.

Like many children diagnosed with autism spectrum disorder, Ryan is sensitive to various sounds, such as the microwave or creaking on the stairs.

Dione said there was a time when Ryan couldn't stand to listen to the car radio.

Frank said he also had trouble if they were in a store and the public address system came on.

Watching videos like Disney's "Little Einsteins," and "Thomas the Tank Engine" helped Ryan break down different sounds and music, Dione said.

"This was the first year we could play Christmas music in the house," Frank said.

Dione said Ryan "was a very, very happy baby, pretty easy going," but she started to notice signs that he was not developing properly early on.

For example, when he was a year old, he didn't wave goodbye or point at objects like other children do at that age, she said.

At 2 1/2, Ryan would say some words, "but I would never hear those words again,"she said.

At 3 1/2 years old, Ryan talked more, but mostly would repeat phrases he heard while watching videos, his mother said.

If she asked him "Do you want waffles or pancakes?" Ryan would reply, "Waffles or pancakes" and not answer her question, she said.

A former preschool teacher with some knowledge of childhood development, she found herself doing more research online and in books. Little by little, she came to realize her son showed signs of autism spectrum disorder - a diagnosis later confirmed by the Seacoast Child Development Center at the University of New Hampshire in Durham, where Ryan was evaluated.

Dione said it's taken a lot of hard work and patience to help their son reach this stage of his development.

One of the most difficult aspects was figuring the right type of therapy to help their son learn to communicate and engage the world around him, she said.

Her son attended a preschool program offered by the local school district, but his mother said she wasn't satisfied with the services they provided.

At age 4, Ryan attended the Dover Childrens Center kindergarten program for a year and received more than two hours of speech and occupational therapy weekly.

"Ryan was very fortunate to have a wonderful kindergarten teacher," his mother said. "They focused more on pure childhood development."

They helped Ryan learn to play with other children and made sure Ryan always was involved with class activities, she said.

"At that time, Ryan would not do an activity for more than a minute or two," she said.

The teachers made several possible activities available at once, with roughly six things for him to do at any given time. They would go from one thing to the other as needed to guide Ryan, his mother said.

At home, she and her husband continuously worked with their son to reinforce the skills and learning techniques used at school, she said.
Dione learned the best way to teach Ryan how to do a simple task like drawing a picture was to break it down. Instead of asking him to draw a face, she would practice helping him draw the eyes. Little by little, Ryan improved his speech and play skills, she said.

Frank said they've also learned there is no hourglass that governs how much their son can learn.

Many doctors and childhood experts told the couple their son had to master certain skills by age 6 or his learning window would close.

But Ryan's speech and occupational therapists told the couple the brain is malleable, and people never lose the ability to learn, even if they have autism, Frank said.

"You got to crack the code" when it comes to helping children with autism learn, Dione said. She compared the process of trial and error to what Thomas Edison said about creating the light bulb. Edison used to say he found 10,000 ways not to make a light bulb before he discovered the right way, Dione said.

But the couple says they by no means believe they've found the best or only way to help other families who have children with autism. If there's one common thread other people can take from the Nichols' situation, it would be hard work and never giving up, no matter what, they said.

"We had plenty of bleak days," Frank added.

Now Ryan's father said he feels more optimistic his son will have a good life.

"It gives me hope for a better tomorrow," Frank said.

As Ryan heads toward first grade, his parents say there are still many challenges that remain to help their son build his social and communication skills. But they add that they also feel they'll meet those challenges based on what they've experienced so far.

"I'm proud of Ryan because he's worked so hard," his mother said

ummimon

dah set appointment dgn Rose Peng. pg kat klinik dia dekat2 south city plaza.
btw, my son (his name is Iman) ni dah kena start speech theraphy. i baru tau 3 tempat ie HUKM, Damansara Sp and Innovative Hearing. Anymore suggestion? lepas raya ni nak start hantar dia. or do i wait for assessment result dulu?

puakumbu

Originally posted by ummimon at 20-9-2008 10:16 PM
dah set appointment dgn Rose Peng. pg kat klinik dia dekat2 south city plaza.
btw, my son (his name is Iman) ni dah kena start speech theraphy. i baru tau 3 tempat ie HUKM, Damansara Sp and Inno ...

ummi nak antar Iman kat ST (speech theraphy) mana? berapa kali seminggu? saya cadangkan kalo boleh ST tu wat la 2-3/week so that ia dapat membantu Iman untuk dapatkan speech.

Actually ada jugak a few ST (private) kat kolumpur ni tapi charges dia mahal sikit la,kalo tak silap around RM 70-RM90/session (45mins to 1 hour session). at the same time whatever ummi blajar from ST,make sure buat jugak latihan dan praktikkan dirumah..dgn cara ini insyaallah lagi cepat Iman boleh bercakap (dengan izin Allah).

ummimon

sebenarnya belum start lagi.
insyaAllah lepas raya nanti.
belum betul2 set nak pegi yang mana. masih kumpul info.
if you don't mind, can you share ST yang ada di KL ni di mana? FYI, I am staying in Cheras and work in Bangsar.
problem sekarang ni ialah sebab saya bekerja. nak hantar 2 or 3 kali seminggu tu cam quite impossible if i stay on working. see lah how the progress. kalau tak i may take unpaid leave setahun or so. i dont want Iman's speech problem tak boleh dibaiki just because alasan maknya sibuk bekerja.

shidahameera

Originally posted by puakumbu at 19-9-2008 09:47 PM


berapa tahun umur anak shidah? it's normal for asd child kurang pergaulan social...

saya cadangkan shidah try expose/ajar dia untuk membantu social skill anak shidah tu...if dia dah ke sek ...

anak saya sudah 8tahun. mula ikut therapist sejak umur 5thn kat hospital selayang, tapi sebab kan tak berapa berkesan nampaknya, masa umur dia 7thn i pindahkan dia ke SJMC. language, OT dan pakar sekali.Alhamdulillah dia boleh dicontrol.
OT pun banyak ajar saya cara nak interaksi ngan dia.

orange_lemon

salam seme..
dah lama tak msk sini...saya mempunyai dua orang anak lelaki...first 4 thn, second 2 thn...yang first saya dah bawa jumpa paed kt GH, sememangnya pjg ceritanyer...sampai skrang doc tu tak boleh nak ckp lagih anak i autistic atau tidak...tp naluri ibu mengatakan anak saya memang autistik...ciri2 autistik tu memang banyak yang ader pada ank saya.dia hanya boleh bercakap satu words sahaja...kalau dia tengok gambar-gambar binatang contohnya ayam, itik dsbnya...dia akan buat bunyi jer...bukannya dia sebut nama benda tuh...itik dia panggil puck-puck...ayam-kok-kok dsbnya lagih...

ummimon

salam semua.

Iman dah pegi jumpa psychiatrist semalam.
Resultnya, dia ada ADHD (at the starting point) tapi yang AD tu lebih prominent dari part HD.
He's also ada GDD (Global Delay Disorder) where perkembangan dia tak seperti umurnya.
Sensory not well developed and not well integrated.

Recommended for OT and ST. She suggested that we choose a place that offer both. Dr Rose suggested 2 places i.e. Gleaneagles and Prince Court. We're opting for Gleaneagles rasanya. Nak start after raya.

Lepas raya gak kena pi jumpa Dr Rose untuk isi form panjang berjela then dia akan bg tasks for us to do at home.

For myself, I'm giving myself a pat on the back for coming to terms with what happen now and finally grew out out my denial.

When asked if Iman will grow up like any other normal kid or if he will be able to attend normal primary school when the time comes, Dr Rose said that would be our aim but she's can't promise anything. Kena put effort to help Iman out.

ummimon

he's 4. better pi buat proper assessment. if need be, kena buat terapi dah. at 4yo, it's about the right time that we detect something is not right. ni psychiatrist yang saya jumpa semalam lah cakap. gud luck.

shidahameera

Originally posted by ummimon at 23-9-2008 09:51 AM
salam semua.

Iman dah pegi jumpa psychiatrist semalam.
Resultnya, dia ada ADHD (at the starting point) tapi yang AD tu lebih prominent dari part HD.
He's also ada GDD (Global Delay Disorder) ...

ummmi
kena rajin buat task yg diberikan. dulu memula shidah malas betul tapi bergilir-gilir ngan hubby buat. sebab fikirkan masa depan dia nanti.

shidahameera

Originally posted by orange_lemon at 22-9-2008 10:59 AM
salam seme..
dah lama tak msk sini...saya mempunyai dua orang anak lelaki...first 4 thn, second 2 thn...yang first saya dah bawa jumpa paed kt GH, sememangnya pjg ceritanyer...sampai skrang doc  ...

ya..ada tanda2 tu. sebab anak shidah yg baru genap umur dua tahun ogos lepas pun dah boleh cakap laju 3-4 patah words

"papa adik mana"
"baju adik mana"
"tolong buka ini"


berbeza dgn abangnya dulu yg 4thn belum bercakap.

ummimon

dia belum bg task lagi. next appointment kena pi isi borang hak ambik masa 2-3 jam tu, then baru dia bg homework. kelmarin just buat diagnosis je. dia bg Iman nootropil. makan 1.6ml every morning.

i really need to rearrange our life and priority sekarang. saya bekerja dan selalu balik lewat. hasben saya kata if need be saya akan ambik unpaid leave setahun atau 2. kalau rasa perlu sangat, baru saya quit kerja.

itulah, sebab fikirkan masa depan dia.

shidahameera

Originally posted by ummimon at 24-9-2008 08:34 AM
dia belum bg task lagi. next appointment kena pi isi borang hak ambik masa 2-3 jam tu, then baru dia bg homework. kelmarin just buat diagnosis je. dia bg Iman nootropil. makan 1.6ml every morning ...

1 year unpaid leave? lama tu, company u tak boleh adjust masa bali lebih cepat ker kul 4 misalnya. dulu i pun hampir2 resign sebab nak uruskan dia tapi sb boss tak bagi berhenti i sambung kerja, balik pkl 5-6ptg dan sabtu ahad cuti.
kalau fully duduk rumah dia lagi manja dan malas nak berdikari. itu cara saya saja. kalau ummi nak teruskan mmg baguslah.

ummimon

tak pasti lagi.
belum discuss dgn boss. kalau dia boleh flexible, saya tak perlu resign.
nak kena tengok how things go on dulu.

ummimon

tak pasti lagi.
belum discuss dgn boss. kalau dia boleh flexible, saya tak perlu resign.
nak kena tengok how things go on dulu.

ummimon

tak pasti lagi.
belum discuss dgn boss. kalau dia boleh flexible, saya tak perlu resign.
nak kena tengok how things go on dulu.