Budak Rama-Rama

kentel · Post time 20-4-2016 01:27 PM

MOST teenage boys love to run around and play – but ‘Butterfly Boy’ Jonathan’s skin is so delicate it falls away at the slightest knock. Fourteen year-old Jonathan Pitre, from Russell, Canada, lives in constant pain as 90% of his skin blisters and peels from his body - making it look as if he has third degree burns. The excruciating pain is so bad he has constant headaches and nausea, and often spends nights awake in agony. Helpless mum Tina Boileau, 35, has to watch her son writhe in pain as she wraps him from head to toe in bandages to ensure he doesn’t get infections.

intan_smsb · Post time 20-4-2016 02:41 PM

kesiannya tengok, seksa die

kentel · Post time 20-4-2016 02:53 PM

intan_smsb replied at 20-4-2016 02:41 PM
kesiannya tengok, seksa die

tgk dia tukar balut tu....sian nangis...

intan_smsb · Post time 20-4-2016 03:00 PM

kentel replied at 20-4-2016 02:53 PM
tgk dia tukar balut tu....sian nangis...

sakit weh, kite yg luka sikit pun x tahan

mula2 igt budak rama2 mcm cerite ni

kentel · Post time 20-4-2016 03:01 PM

intan_smsb replied at 20-4-2016 03:00 PM
sakit weh, kite yg luka sikit pun x tahan

mula2 igt budak rama2 mcm cerite ni

citer ape tuh tannn

alieyrina · Post time 20-4-2016 03:12 PM

Ya allah..aku baca ja..x sanggup tgk pnderitaan..

intan_smsb · Post time 20-4-2016 03:13 PM

kentel replied at 20-4-2016 03:01 PM
citer ape tuh tannn

cete antu, cuba tgk trailer cete ni seram gakn yg pastinye tan tutup je mata smpi abes cete

intan_smsb · Post time 20-4-2016 03:14 PM

alieyrina replied at 20-4-2016 03:12 PM
Ya allah..aku baca ja..x sanggup tgk pnderitaan..

tayah tengok u, budak tu mengerang ms balutan tu di muka
sian sangat

ai pun tgk separuh je

kentel · Post time 20-4-2016 03:27 PM

intan_smsb replied at 20-4-2016 03:13 PM
cete antu, cuba tgk trailer cete ni seram gakn yg pastinye tan tutup je mata smpi abes cete

citer tu baru kua wayang kan....

intan_smsb · Post time 20-4-2016 03:29 PM

kentel replied at 20-4-2016 03:27 PM
citer tu baru kua wayang kan....

yela uols tu x sempat la, klu x leh tgk geder2 gan kamiorg ritu

kentel · Post time 20-4-2016 03:54 PM

intan_smsb replied at 20-4-2016 03:29 PM
yela uols tu x sempat la, klu x leh tgk geder2 gan kamiorg ritu

kentel keje...balik pun sampai uma jam 6...nak rushing lagi ke OU tu..mmg idok ler nak meranduk jam...

alaa · Post time 20-4-2016 03:58 PM

ai ada follow satu fb pasal 2 orang budak ni ada penyakit yang sama macam ni. kat malaysia ni la..mak dia rajin update sebab nak educate pasal penyakit EB ni.

DeeqarhTupperware for Diqah&Aqee. cuba korang tengok. sedih ok tengok budak2 ni. tiap kali tengok fb mak dia pasal budak2 ni, aduhh meruntun jiwa rasa. kite luka sikit dah sakit. tapi diorang....

intan_smsb · Post time 20-4-2016 04:03 PM

kentel replied at 20-4-2016 03:54 PM
kentel keje...balik pun sampai uma jam 6...nak rushing lagi ke OU tu..mmg idok ler nak meranduk ja ...

weols malam tu tgk lambat dlm pkl 9.30 bru msk panggung
xpe la next taim weols leh plan lg, lgpun sheols kn da stay sni

kentel · Post time 20-4-2016 04:13 PM

alaa replied at 20-4-2016 03:58 PM
ai ada follow satu fb pasal 2 orang budak ni ada penyakit yang sama macam ni. kat malaysia ni la..ma ...

tp tengok mcm that kid yg dlm YouTube tu lagi teruk...blisters all of her body...

kentel · Post time 20-4-2016 04:14 PM

intan_smsb replied at 20-4-2016 04:03 PM
weols malam tu tgk lambat dlm pkl 9.30 bru msk panggung
xpe la next taim weols leh plan lg, lgpun ...

plan lah piknik tu

Rainrein · Post time 20-4-2016 08:33 PM

Me kalu pasal anak anak ni memang mudah tersentuh. X sanggup nak tengok dorang sakit. Mulala nak berair mata nangis.

rosa_canina · Post time 21-4-2016 08:52 AM

kesiannya

seksa tahan sakit

outcast · Post time 21-4-2016 11:02 AM

Edited by outcast at 21-4-2016 11:03 AM

oo budak ni , tgk kt utube
mmg bijak & matang ... siap dia ckp wpun dia tau dia x lama idup .. tp
dia nk buat each and every second count ... such a wise brave boy tgk waktu dia salin bandage tuh .. kesian giler ... mesti pedih ..
an amazing boy