Anak comelku Autistic Spectrum Disorder

shidahameera

Originally posted by puakumbu at 20-10-2008 09:35 PM


mami06,

great article :-)

im waiting for mami o6 to show me sejauhmana implementation dia pada anaknya berjaya without follow normal treatment for autistik kid, takder speech therapist, takder occupational therapist dan tiada ubatan kimia.
sebab i cannot follow her style. but about dietary..it's good and can be try this method. however sejauhmana kita boleh control anak from sesekali mintak fast food. i cuma bagi fast food seminggu sekali sbb dia minta McD, pizza,hot dog.
coz theory is easy than practical.

amydamia

bole saya tau who is Dr kadir? and kat mana clinic dia?

shidahameera

Originally posted by puakumbu at 20-10-2008 09:35 PM


mami06,

great article :-)

test

ummimon

semalam 2nd session ST dan OT.

ST - ada nampak improvement dari 1st session. maybe sbb dia dah comfortable sikit kot. dia boleh duduk diam dalam 1/2 jam - 45 minit semalam. boleh buat jigsaw puzzle, main lekat2 tu. ada jugak dia bangun2 sebab restless. cuma nak suruh dia sebut tu, dikepit2nya bibir dia tanak bercakap. homework minggu ni is color dengan size.

OT - dah kurang melalak dari 1st session. melalak tu melalak jugak tapi apa OT suruh buat, dia buat jugak. homework mgu ni dot to dot tracing and lukis bulat2.

Ada komen pasal ritalin. Iman is not taking ritalin tp ambik nootropil. Anyone can comment?

ummimon

pon nak tau jugak.
maybe mami tau method2 ST dan OT kot.
kalau ST tu maybe blh buat kat rumah (kalau tau caranya)
OT lak, maybe tak cukup bahan kat rumah. setakat benda2 kecik tu adalah tapi cam bola besar, buaian tu takde lah. atau ada cara lain?
any books to refer on method dan yang sewaktu dengannya.

shidahameera

Originally posted by ummimon at 22-10-2008 10:55 AM
pon nak tau jugak.
maybe mami tau method2 ST dan OT kot.
kalau ST tu maybe blh buat kat rumah (kalau tau caranya)
OT lak, maybe tak cukup bahan kat rumah. setakat benda2 kecik tu adalah tapi c ...

betul, kita tak banyak peralatan utk buat semua tu. most of them expensive jugaklah

miezamo

Originally posted by shidahameera at 20-10-2008 10:37 AM



thanks yer mami
yer...dia mmg nama lain bg Ritalin. Doctor mmg dah explain before consume to my son.  mmg kena bagi ubat tu utk kawal hyper dia, kalau tidak dia tak mau belajar langsung. u ...

same goes to me..mmg i tau the side effect but to make him sit down n study without the medication mmg sukar sesgt...but for me i just give him very minimal dose half tablet (5mg)
And his appetite ok...malah tambah kuat mkn..last week bawak die gi appmt doc timbang berat naik 2 kg..

miezamo

Originally posted by shidahameera at 21-10-2008 08:26 AM




im waiting for mami o6 to show me sejauhmana implementation dia pada anaknya berjaya without follow normal treatment for autistik kid, takder speech therapist, takder occupational therapi ...

i pon excited gak nk tau...shidah is right..theory nmpk mudah not practical
pls share mami 06..

shidahameera

Originally posted by miezamo at 22-10-2008 04:33 PM

same goes to me..mmg i tau the side effect but to make him sit down n study without the medication mmg sukar sesgt...but for me i just give him very minimal dose half tablet (5mg)
And his appe ...

hai...miezamo..welcome to our mommies club.
shidah bawak dia jumpa doc kat SJMC saturday ni 25 oct. nak kena sambung ubat dia, dah tinggal 3-4 biji ajer lagi.

shidahameera

Originally posted by miezamo at 22-10-2008 04:35 PM

i pon excited gak nk tau...shidah is right..theory nmpk mudah not practical
pls share mami 06..

perkenalkan sikit pasal anak Mie tu?

mami06

huih, banyaknya soalan. I dah follow CFGF diet dari December 06 lagi. Ni sebab Dr Kadir recommend. Dia lecture kitaorg cukup2. Anak I alhamdullilah tak nangis atau buat perangai bila I start diet nih. I brentikan susu pun, x de pulak dia nangis mintak. Ice cream, roti, biskut, coco krunch, McDonalds, semua I x bagi kat anak I. Dia nak ice crream saya potong pisang berangan freezekan, pas tu blend. Jadi la ice cream pisang. So dapatla jugak dia makan ice cream. I cuba cari alternatif, kat Cold Storage ada jual rice milk, rice pasta, gluten free cereal, biskut, etc. Mahal sket, rasa pun kureng sedap, tapi alhamdullilah anak I makan. I cuba gak buat almond milk, roti, muffin, pancake & nugget sendiri, x pakai tepung gandum, ada yg berjaya, ada yg tidak. Selain dari CFGF diet, I bagi DHA, chorella, madu khaula, kismis, kurma... KAdang2 ngelat la gak, bagi dia makan biskut raya time raya nih. Tapi 99% of the time mmg ikut diet tu. Perubahan mmg x nampak serta merta, tapi kalau difikirkan progress anak I mmg dah banyak, mostly hasil dari diet CFGF shj. Dulu dia bercakap org x faham, hanya sepatah sepatah, sekarang dah boleh buat ayat, "Saya potong rambut hari ni, saya lapar nak makan nasi goreng, etc..."Alhamdullilah. Dr KAdir pesan suruh rajin sembahyang hajat, so saya buat jugak setakat mampu.   I x pergi OT or ST I dah check kat private hospital, too expensive for me. Start March this year we go to Master Leong, start acupuncture. We go every Saturday for 6 months. Diet tu still teruskan. First day balik dari acupuncture tu I dah notice improvement, anak I selalu on computer, main taip je kat keyboard huruf...Balik dari acupuncture, dia sit down dan taip Mami, Abah, etc...terkejut I. I think acupunture tu helps him calm down so he can type proper words. Now we dah stop pulak acupuncture sebab rasa improvements dia thru' acupuncture dah maximum dah, I tengah cuba Colour VIbration Theraphy, pengasasnya Prof Dr Norhisyam Wahab. I nak kata anak I cured x boleh lagi, dia dah toilt trained, bercakap dah makin banyak, dah boleh membaca, kita suruh buat apa2 semuanya dia respond, cuma bab menulis anak I masih x boleh. So target I, next year nak dia pegi standard one sama dgn kanak2 normal. I kena concentrate ajar dia menulis, but since I kerja payah la sket. But really, progress dia mmg alhamdullilah bagus. Mcm Dr Kadir dan Master Leong kata kena persistent. Mula2 mmg rasa payah pantang itu ini, but it really works for me. I've learned so many things. Having said that, kena ingat gak, tahap autism kanak2 semuanya berbeza. So kalau saya dapat result lepas 2 thn amalkan CFGF diet, org lain mungkin lebih cepat atau lambat lagi, saya pun x pasti.

shidahameera

Originally posted by mami06 at 22-10-2008 05:25 PM
huih, banyaknya soalan. I dah follow CFGF diet dari December 06 lagi. Ni sebab Dr Kadir recommend. Dia lecture kitaorg cukup2. Anak I alhamdullilah tak nangis atau buat perangai bila I start diet ...

oooohh..thanks pada penerangan itu, salute dgn kerajinan dan kesungguhan u yang lebih dari saya. saya tak mampu jadi macam u.
.jadi anak u dalam kategori autistic tahap berapa after diagnosis itu?

miezamo

Originally posted by shidahameera at 22-10-2008 05:11 PM



hai...miezamo..welcome to our mommies club.
shidah bawak dia jumpa doc kat SJMC saturday ni 25 oct. nak kena sambung ubat dia, dah tinggal 3-4 biji ajer lagi.

thx shidah..i just found tis tread la..kalo tau lame dh i join
i pon br amik ubat during last appmt..during weekend mmg x bg time skolah jek

miezamo

anak i dignosed mild autism n ADHD..now dh 7 year old..dh skolah but in special klass..start perasan die autism umo die 4 thn tp during tat time die x hyper..a year after baru nmpk hyper...cannot sit and jumping all the time. He start terapi umo 4 thn lg and now still continue OT kt HUKM but ST dh stop since die dh improve a lot in speech..
i start diet pon lewat..so byk ketinggalan and susah nk disiplin sbb die nk pandai x mau if ade makanan yg x kena ngan tekak die..
sekarang ni i try to focus on his reading n writing.. sbb die paling lemah bab tu..i x hire any other OT sbb x mampu

miezamo

Originally posted by mami06 at 22-10-2008 05:25 PM
huih, banyaknya soalan. I dah follow CFGF diet dari December 06 lagi. Ni sebab Dr Kadir recommend. Dia lecture kitaorg cukup2. Anak I alhamdullilah tak nangis atau buat perangai bila I start diet ...

i kagum ngan kerajinan u..i hope i can be like u...

mami06

I x tau anak I autistik tahap apa. Dr Kadir hanya cakap anak saya hyperactive with mild autism. Eye contact dulu mmg susah lah. Sekarang dia selalu panggil saya nak ajak membaca sama-sama atau dia nak tunjuk saya sesuatu. Ada lagi yg saya perlu improvekan anak saya. Dia kalau excited sangat dia balik kepada perangai dulu, bercakap laju sampai orang pun x faham, berlari2, lompat2 x de sense of danger. So kalau kat luar rumah kena jaga2, takut dia terlampau suka bermain, dia lintas jalan atau melompat longkang or sth. But kalau dia calm down, then dia boleh bercakap clear, cerita kat I apa dia buat hari ni, dsb. I masih risau, kat tadika cikgu ajar dia one on one, so senang la. Nanti standard 1 dah x dapat perhatian mcm tu, so I x tau dia boleh pick up tak kalau cikgu mengajar di depan. So many things still have to improve. We are making progress one step at a time. Casein dlm susu dan gluten dlm gandum, oat dan barley ni bila budak autistik makan dia jadi high. Mcm org dapat dadah. Jadi kalau high, rasa terapung sepanjang masa, mcm mana nak belajar, dia langsung x aware or his surroundings, dok syok sendiri. So to get casein and gluten out of his system takes time, jadi kena sabar banyak2 buat diet nih. Lagi satu bagi saya Ritalin x akan sembuhkan anak saya. Jadi kenapa ambil?? Sampai bila nak ambil? Saya nak anak saya sihat bila dia dewasa. Kalau ritalin dah proven banyak negative side effects, nanti anak saya dewasa jadi apa? I x nak anak saya sakit, so I cuba alternatif lain yg lebih selamat. Husband plays an important role. Malam 8pm dia bawak budak2 naik, bacakan buku, then bagi depa tido. Saya kat bawah search la apa2 yg patut mengenai autism. Dak pun saya ke dapur buat any CFGF recipe. Contohnya saya buat nugget banyak2 saya freezekan. Babysitter saya bekalkan makanan utk waktu petang. So dia x akan bagi anak saya junk food atau roti. pagi makan Pancake, telur goreng atau nasi lemak. Tgh hari nasi. Petang nugget ayam atau ikan, jagung rebus,kacang2 spt macadamia, almond atau CFGF cereal. Madu khaula dengan sugar free juice tiap2 hari saya bekalkan. Malam nasi atau rice pasta atau bihun. Please try the diet, I baca mat salleh ni dia berhentikan susu, anak dia menangis 3 hari 3 malam. Tapi dia buat jugak. Sekarang anak dia dah masuk kelas kanak2 normal. It does work. Try search mengenai diet nih. Dah ramai org buat dan berjaya. Start dgn stop milk first. After a few weeks stop wheat, oat dan barley. Cuba sikit2. Kalau nak stop terus 100% mmg susah.

manjakani

Assalammualaikum all,
Lama gile tak log in dalam cari ni dah tak tau cerita. just to update on my son, before raya hari tu kami bawa dia second opinion kat HUkm. He's now 3 years 10 months and result his assessment:
Language at 12 months
Social interaction at 18 months
Physical development at 24 months

Banyak lagi yang we have to do with him. Now, he's attending spices twice a week, speech ay ukm jln temerloh, once a week tapi hari ni last sebab student nak exam so continue in january. mingle with sis in normal kindy every friday, ot at gh once a month, and speech once every 3 months for progress update. we started gfcf diet dah 3 months and alhamdullillah, his attention improve, eye contact still need a lot of training. now 2 to 3 secs je.

Actually, i nak recommend this website http://www.autism.com/dan/index.htm and i tengah belajar pasal DAN (Defeat Autism Now Protocol) tu. Dalam website tu ada videos of autistic children yang dah cured. Yes, CURED. I percaya semua parents nak yang terbaik untuk anak mereka kan and what ever source pun kite akan cube and what ever obstacle pun kite akan cube renangi kan so do drop them a line. since i registered banyak dapat infos from their newsletter and what intrigue me is the biomedical interventions that the parents opt for their children. Not all children respond to the same biomedical intrervention. Once child might respond to secretin, the other might not, one might respond to IVIG, one might not. Dalam DAN Protocol tu parents buat a lot of blood tests, urine tests and from the tests they identify their course of action, contoh, one kid was having mercury poisoning from mom's pregnancy with mercury levels that high enough for concern in his blood sample, so the parents opt fr chelation therapy. I have searched high and low for a DAN doctor here in Malaysia to no avail but itu tak patahkan semangat i. A very good book that i can recommend in 'Facing Autism' by Lynn Hamilton. Do get it. I got mine at Kino. The last copy they have. I'm sure they have ordered more.

On my part, I have discussed that what Autism Research Institute tu buat need to be done here in malaysia as well with some doctors in Institute Pediatric HKL. They are keen on the ideas and we wanted to have a protem meeting to set up an organisation that focuses on research of autism in malaysia and source out ways to cure our children's starving brain. so dengan penuh rasa syukur dan rendah hati, i menjemput sesiapa especially parents of autistic kids yang really keen and have the same ideas as me to call me direct to discuss futher. i tak dapat nak explain panjang2 kat sini but if we cam sit down and talk, i;ll be more than willing to share. This contact number is solely for discussion on the proposed research organisation k....
call sharifah: 0133375688.

Doakan anak kita semua.... Insyaallah all will be better...

-Sharifah-

ummimon

wahhh... salute kat mommies yang boleh apply diet tu. nampak cam susah kan. yet you all boleh buat.

saya bawak anak pg ST dan OT. bukan saya banyak duit tapi demi dia, saya reallocate duit utk treatment dia. alhamdulillah, tak lama lepas mula tu, kami boleh dapat GL.

thread ni cam sepi skit, setuju tak.
apa kata mommies yng terlibat ni meriah-meriahkan sikit?

ummimon

during our last OT, Iman was given a short pencil to begin with. kami tanyalah apsal pensel dia pendek sangat. it was actually to train budak pegang pensel dengan betul, at the right place. and to help him learn how to grip the pensel.

shidahameera

Originally posted by mami06 at 22-10-2008 10:30 PM
I x tau anak I autistik tahap apa. Dr Kadir hanya cakap anak saya hyperactive with mild autism. Eye contact dulu mmg susah lah. Sekarang dia selalu panggil saya nak ajak membaca sama-sama atau di ...

seperti apa yg kita ketahui, memang Ritalin,Concerta or any prescription bukanlah utk cure autistik cause autistic mmg tak boleh disembuhkan tapi boleh dirawat untuk mengurangkannya.
Concerta digunakan utk tujuan pembelajaran sahaja iaitu sewaktu masa sekolah. Kesan ubat habis pada pukul 6ptg.
Jadi anak Mami umur berapa sekarang ? lelaki atau perempuan