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Author: GhostWalking

[Tempatan] Pelajar Final Year Medik Meninggal Akibat Lupus.Rahsiakan Dari Keluarga..

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 Author| Post time 24-12-2015 08:05 AM From the mobile phone | Show all posts
pauliza replied at 23-12-2015 02:46 PM
dos ubat bergantung pada patients.ubat yg biasa patient Sle ambik adalah prednisolone aka  steroid ...

Terima kasih atas penerangan tersebut pauliza.Selama ni selalu dengar cuma xtau in detail pasal SLE..iols harap u akan get better soon.steroid kan banyak side effect kalau amik long term so ada tak doktor bgtau macamana nak kurangkan the side effect?
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 Author| Post time 24-12-2015 08:07 AM From the mobile phone | Show all posts
sabbath_shalom replied at 23-12-2015 04:41 PM
SLE ni penyakit sorang porummer BOD Seram....yg namanya Es tu kann.

Cik es tu cakap kena SLE saja nak TP kan.in actual dia mentally unstable kan sis?buat main2 kekonon ada sakit tu seeloknya jangan la.kang sakit betul2 baru tau
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Post time 24-12-2015 08:49 AM From the mobile phone | Show all posts
naina replied at 24-12-2015 12:25 AM
Takziah..muda lg ke masa tu?

Arwah umur 26 masa tu
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Post time 24-12-2015 08:57 AM From the mobile phone | Show all posts
GhostWalking replied at 24-12-2015 08:05 AM
Terima kasih atas penerangan tersebut pauliza.Selama ni selalu dengar cuma xtau in detail pasal SL ...

antara side effect steroid tulang & gigi boleh cepat reput .jadi dr bagi sekali calcium & vitamin D .dos yg iols ambik skrg ni dos paling minimum .apa2 pun ,iols akan check up setiap 3 bulan,check darah & urine.iols skrg di monitor oleh pakar buah pinggang.kiranya ,apa2 masalah  dlm darah & urine,dr cpt recognise & cari solution. .sebab SLE iols attack kidney paling penting utk check urine .org normal biasanya urine clear tapi org yg ada masalah buah pinggang either drp SLE ataupun nefrotic syndrome ,ada darah & protein dlm urine .iols masa awal didiagnosed ,protein 4+ dlm urine ,sangat tinggi.lps treatment ,mkn ubat & chemo,alhamdullilah skrg dah negative .
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Post time 24-12-2015 09:07 AM From the mobile phone | Show all posts
GhostWalking replied at 24-12-2015 08:05 AM
Terima kasih atas penerangan tersebut pauliza.Selama ni selalu dengar cuma xtau in detail pasal SL ...

kdg2 org takut dgn side effect ubat utk long term & try & error mcm2 produk ..end up will worsen the simptoms ..konsepnya mcm ni lah,org takut mkn ubat sebab takut dgn long term side effects ,tapi lupa kalau x mkn ubat ,bkn setakat long term,maybe short term hidup pun tak dapat...... sebab SLE ni memang pelik ...lols  pernah masuk ICU ,dr pun penah ckp peluang utk hidup 50-50 ..mcm miracle jgk bila dapat sembuh walaupun still kn mkn ubat.. lps iols recover,iols malas nak pikir bnyk.just enjoy my present life .buat apa je yg happy kan diri & hargai org2 yg afa dgn kita masa kitavsakit d
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Post time 24-12-2015 09:08 AM From the mobile phone | Show all posts
GhostWalking posted on 24-12-2015 08:07 AM
Cik es tu cakap kena SLE saja nak TP kan.in actual dia mentally unstable kan sis?buat main2 kekono ...

Cik Es tu legend betul kat bod hantu tu...

Bila ingat SLE ingat Cik Es...dia tu tu memang writer yg hebat tapi dijalan yang salah
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Post time 24-12-2015 09:15 AM From the mobile phone | Show all posts
kyrana replied at 24-12-2015 06:52 AM
Adik ipar pun try guna daun rerama.Masa tu teruk sgt condition dia sampai tak boleh jln. Kesian sg ...

skrg mcm mana condition dia?
mcm mana nk ckp ya ,iols faham apa yg adik ipar uols rasa .masa awal2 sakit ,iols pun rasa dunia ni gelap ,ya Allah kenapa aku ...iols pernah rasa mcm nak mati je ..iols pun mcm tu jgk,rasa mcm hopeless,apa produk yg org jual ,org kata boleh sembuhkn penyakit iols try . end up nya ,buah pinggang iols makin teruk ,kaki bengkak smp 20 kg ,admitted wad sebulan ,siap masuk ICU lagi.lps tu iols memang fokus 100% dgn ubat hospital .org jual la apa pun,iols tak berani .
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Post time 24-12-2015 09:19 AM From the mobile phone | Show all posts
kyrana replied at 24-12-2015 06:52 AM
Adik ipar pun try guna daun rerama.Masa tu teruk sgt condition dia sampai tak boleh jln. Kesian sg ...

tapi ada jgk patients yg try & error produk & serasi dgn diaorg .bnda ni ikut nasib jgk .sama mcm ubat ,ada yg serasi ada yg tak .tapi iols kena highlightkan ni sebab dah ada kajian ,ALFAFA boleh sebabkn SLE jadi makin aktif .nak try produk paling penting ,make sure xde alfafa.
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Post time 24-12-2015 09:23 AM From the mobile phone | Show all posts
jazaa100 replied at 24-12-2015 06:57 AM
Semuga Liza cepat sembuh....

Terbebannya rasa nk kena amik ubat hari-hari....I nk amik suppleme ...

Thank U .hehe ..dah jadi habit .dulu pun iols mcm tu .skrg ni 10 biji pun telan je sekaligus .
tak kisah la sakit apa pun ,yg penting kena positive ,lawan penyakit & elakkan stress .In shaa Allah every will getting better & better
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Post time 24-12-2015 09:25 AM From the mobile phone | Show all posts
pauliza replied at 24-12-2015 09:15 AM
skrg mcm mana condition dia?
mcm mana nk ckp ya ,iols faham apa yg adik ipar uols rasa .masa awal ...

Rasanya ok sikit tp dh lama xjumpa,ms blk kg hari tu dia pergi vacation. I assume dia makin ok mudah2an.kesian sgt tgk masa teruk tu. Anak2 kecik lg pulak tu. Mudah2an dia kuat semangat mcm u n still jumpa doc. Tp betullah kan sle serang organ dalaman,buah pinggang jd lemah tu yg tk boleh ambil ubat alternatif sebarangan.
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Post time 24-12-2015 09:26 AM From the mobile phone | Show all posts
Changa replied at 23-12-2015 08:58 PM
Sayang nya dah final.year,,, semoga beliau di cucuri rahmat

Alhamdulillah.

Pestime baca komen si faizal aka changa ni komen yang bertamadun.baik2.biase asik maki n sembah berhala je kehulu kehilir.

Well semoga mangsa ditempatkan dikalangan org beriman.Takziah pada familym
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Post time 24-12-2015 10:06 AM From the mobile phone | Show all posts
pauliza replied at 24-12-2015 09:19 AM
tapi ada jgk patients yg try & error produk & serasi dgn diaorg .bnda ni ikut nasib jgk .sama mcm  ...

Ptt le vit i mkn ni tersng2 ltk warning....pantang besar utk org sle rupanya...i nih sbb allergik jek...nak sapu apa telan apa i musti calit skit kat kulit ngk reactionnya..
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Post time 24-12-2015 10:10 AM From the mobile phone | Show all posts
kyrana replied at 24-12-2015 09:25 AM
Rasanya ok sikit tp dh lama xjumpa,ms blk kg hari tu dia pergi vacation. I assume dia makin ok mud ...

kalo jmp nnti maybe boleh suruh adik ipar uols join SLE Support Group Malaysia di FB.luckily iols jmp group ni masa iols tgh down .bila tgk kat group tu ada yg senasib ,in fact ada yg  lg teruk drp iols .rasa dpt semangat lebih sikit.ada patients yg dah lebih 30 tahun hidup dgn SLE & still survive.
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Post time 24-12-2015 10:22 AM From the mobile phone | Show all posts
honeybee1802 replied at 24-12-2015 10:06 AM
Ptt le vit i mkn ni tersng2 ltk warning....pantang besar utk org sle rupanya...i nih sbb allergik  ...

setahu iols  shakelee antara produk yg ada alfafa.yg lain tu x perasan sgt.tulah,memang kena beware ....iols involved directly jgk dgn Persatuan Sle Malaysia ni.lately ,sangat banyak new diagnosed SLE ni ...ada baru 2,3 hari lps ada mak kpd patient yg call iols ..kesian ,baru 17 masa nak ambik SPM ,SLE atack sendi...nak pegang pen pun tak boleh...iols mujur la sakit lps grad,immediately lps dpt degree ...kalau sakit masa tgh belaja,jauh drp family..entahlah mcm mana nasib...cuma nya ,degree iols skrg simpan dlm gobok je lah.huhu..iols ambik engineering tapi  dgn condition iols pada masa tu,x rasa iols dapat control stress kalo jd engineeer.jadinya skrg,iols buat keja yg iols suka .hati gembira,income pun dapat walaupun x sebnyk gaji engineer& sakit pun terkawal.kdg2 dlm hidup,kita x boleh dpt apa yg kita nak.mungkin kita dpt something & kena korbankan something
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Post time 24-12-2015 10:34 AM From the mobile phone | Show all posts
pauliza replied at 24-12-2015 09:19 AM
tapi ada jgk patients yg try & error produk & serasi dgn diaorg .bnda ni ikut nasib jgk .sama mcm  ...

Yes pau, alfafa bole menyebabkan penyakit autoimmune.
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Post time 24-12-2015 10:53 AM | Show all posts
pauliza replied at 24-12-2015 10:22 AM
setahu iols  shakelee antara produk yg ada alfafa.yg lain tu x perasan sgt.tulah,memang kena bewar ...

aku suka baca posting ko, very positive and informative. Kurang2 orang sakit ni depa bersedia. Orang lain hada?

Tak semestinya yang sakit akan pergi dulu kan.
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Post time 24-12-2015 11:11 AM From the mobile phone | Show all posts
hanalisa replied at 24-12-2015 10:53 AM
aku suka baca posting ko, very positive and informative. Kurang2 orang sakit ni depa bersedia. Ora ...

yup ,tulah masa awal2 diagnosed dulu memang insaf sangat.pikir mati je lah .huhu...tapi my bad,kdg2 bila dah sihat sikit ni ,lupa blk pulak .masa iols sakit ,iols tulis blog ,masa tu iols fikir mcm ni je lah ,kalau iols sihat blk ,harap2 iols dapat baca blk tulisan2 iols tu.kalau x sihat atau meninggal ke ,harap2 ada org lain yg dpt benefit bila baca blog tu.
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Post time 24-12-2015 11:14 AM From the mobile phone | Show all posts
naina replied at 24-12-2015 10:34 AM
Yes pau, alfafa bole menyebabkan penyakit autoimmune.

tulah ,ke beware .sebab iols selalu jmp pakar buah pinggang,ramai jgk patients yg iols jumpa,kena dialisis sebab ambik produk2 mcm2 kat pasaran skrg ni.produk kurus la,putih la .
moral of the story,org yg sihat pun kena beware dgn unsure content in unsure product sebab ada yg boleh rosakkan buah pinggang.
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Post time 24-12-2015 12:39 PM From the mobile phone | Show all posts
pauliza replied at 24-12-2015 10:22 AM
setahu iols  shakelee antara produk yg ada alfafa.yg lain tu x perasan sgt.tulah,memang kena bewar ...

Multivit amway pun...actually apa symptoms sle ni?takut jgk after my system menggila2 dulu tu...
One of our bos dulu penah tetiba sakit mcm mild stroke...before tu takde sakit2 kronik...mcm2 diagnose jgk la dgrnya..kata cancer tp mcm bukan until his death...tp rsnya the stress that killed him....
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Post time 24-12-2015 01:05 PM From the mobile phone | Show all posts
pauliza replied at 23-12-2015 10:46 PM
dos ubat bergantung pada patients.ubat yg biasa patient Sle ambik adalah prednisolone aka  steroid ...

Predisolone tu i pernah dpt waktu kena allergic lastime. Semoga u cepat sembuh yer.
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